E58: Four Stages Of Your Caregiving

 

I'm now 4 years into my caregiving journey.  As I look back I see 4 stages I went through and want to share these with you:  

Stage 1: THE NEW STAGE.  

  • The initial news fills you with shock, disbelief and all those emotions
  • Then you jump in telling yourself I’ll do whatever it takes. I’ll figure it out
  • Here’s where I became obsessed with google - searching anything and everything about your loved one’s condition.  
  • You form your team - doctors, nurse navigators, family support, etc
  • You try to figure out the who advocacy stuff 
  • You're taking care of your loved one
  • This stage is focused on the NOW, the NEW and just figuring it out.  
  • You just want to get going on your loved one’s care
  • You are putting your needs to the side

Stage 2:  ROUTINE OR SETTLING IN STAGE.   

  • Things have now become routine somewhat
  • You're trying to figure out how to balance work, home, caregiving
  • Workload and to do list is bigger
  • Fatigue is usually setting in
  • Stress is increasing
  • You start feeling stretched
  • You may find yourself doing things alone
  • You and your loved one are more comfortable with your team (doctors, nurses, help)
  • You and your loved one are more comfortable with the clinic, labs, treatments, etc
  • You become more of an expert with your loved one’s condition
  • You're more comfortable with caregiving
  • There are good days and bad days
  • Your nutrition and self-care looks different

Stage 3:  AWARENESS AND REALITY or as I call it the LIGHT BULB GOES ON

  • Caregiving is taking its toll on your health both physically and mentally
  • It affects your relationships
  • You may be struggling with finances
  • You may not see it or may not want to admit it yet - you may want to run from it.
  • You realize you can’t do it all and shouldn’t have taken this all on yourself
  • You hope it will go away
  • Caregiving becomes a burden
  • Wishing for your old life
  • Realizing that you're stuck, stretched and overwhelmed...
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