E36: Caring for a spouse with ulcerative colitis while pursing her passions with Diana Winkler

 

Diana Winkler is a singer songwriter and I'm an abuse advocate.  She uses music as one of my healing tools and facilitates Meaning The Soul healing groups.  She is also a podcaster of the Wound of the Faithful Podcast.

She is married to her husband, Brain for 11 years who struggles with severe ulcerative colitis.  Diana is very transparent about her own health struggles with memory loss too.  

In my interview, I ask Diana to share her everyday schedule.  She is figuring it out by juggling her schedule, pursuing her passions and finding time for herself.  

I ask Diana to unpack her caregiving journey.  She shares her spouse’s 10 year journey with ulcerative colitis, from the initial diagnosis,  remission and through the pandemic.  She talks about the stressors of his disease and how it impacts her as a caregiver.  

She shares her gratitude of both being able to work from home but also the stress there too.  

As a caregiver, Diana has had to be that advocate for her spouse's healthcare too.  She has a strong persistence to make sure her Loved One gets the best possible care.  

Then, we shift the interview on Diana and I ask her to share the pressure, stress and anxiety caregiving puts on her.  She shares the added responsibilities she takes on now that her spouse can’t do.  The grocery and meal planning needed.  

I appreciated Diana’s stories of where she lets the little things fall.  As caregivers we may need to just do that.  

Our conversation then led to the frustrations felt as a caregiver.  I am grateful she share this and then her awareness of her situation.  She knows that the disease is what she is most frustrated about, no her spouse.  

To end the interview, Diana and I talked about “filling our cups”.   She shares what really works for her - from her hobbies to martial arts to gardening.  

...

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What to do when you're waiting on testing, treatment options and the prognosis?

 

I never thought I would experience it again.  

These past couple weeks I have been riding the emotional roller coaster of caregiving - again.   

The words that come to mind are sudden, unexpected and why.

Cancer sucks.  It is a nasty disease.   

Aging sucks.  I hate the circle of life right now.  

But this podcast isn’t a pity party or a Debbie downer.  It’s funny how fast you forget about those firsts.  

  • The first inkling that something isn’t right with your loved one.
  • The initial shock and numbness when you hear the bad news.
  • Then comes all those emotions.  
    • Hours of sadness, crying, grief before you really need to
    • Anger, frustration 
    • Worry, confusion 
    • Feeling those nerves inside shaking
    • You can’t focus

First, let me tell you about my Mom.  I’m blessed to have a great mother-daughter relationship.  

She is an energizer bunny.  The social butterfly.  The one that is always willing to help.  She is the hard working blue collar worker with her own cleaning business.  She is still cleaning small apartments at age 79.   

She was married to my Dad 57 years until Dad passed away in 2018.  They both traveled, enjoyed spending time together and spent 15 winters in Arizona with their retirement village friends.  It amazed me to see the activities they did from riding motor cycles to ATVs to DIYing and much more.  

Mom and I did some Mother Daughter trips to Jamaica, Arizona, Minneapolis and Branson

In the last 3 years, I watched my Mom transform from a struggling widow to a strong, independent and happy woman.  If you follow me on Facebook, you might see many photos of our Sunday Fundays together.  When I visit at her senior apartment, her phone is always ringing and someone is knocking on her door.  

But now, she is faced with cancer.  I noticed...

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Riding the Waves of Caregiving: Conquering Chaos and Guilt

 

Navigating the complex world of caregiving often presents an overwhelming sense of guilt and pressure, especially when trying to balance personal life, work, and the needs of loved ones. In a poignant episode of the Caregiver Cup podcast, the personal journey of navigating a tumultuous week during Thanksgiving in 2017 is shared, along with insights on how accepting the present moment can alleviate these feelings.

One of the major challenges caregivers face is when they or their loved ones receive a cancer diagnosis. This life-changing event often throws caregivers into a maelstrom of emotions, making self-care fall by the wayside. The podcast emphasizes the importance of taking it all in, allowing it to settle, and logically prioritizing what's important. Granting oneself grace during these challenging times and leaning into therapy and community for strength is highlighted as a vital part of coping with a cancer diagnosis.

Moreover, the societal pressures caregivers often face can significantly amplify feelings of guilt. These pressures, coupled with the unrealistically high expectations caregivers set for themselves, can make them feel like they are constantly falling short. This episode shares practical tips for managing and overcoming caregiver guilt. These include practicing self-compassion, setting realistic expectations, and seeking support.

Understanding the importance of setting boundaries and acknowledging one's limits is a critical part of being a caregiver. Establishing clear boundaries that ensure time for self-care and personal well-being, while providing care for loved ones, can help caregivers manage their feelings of guilt and promote their overall emotional well-being. This mindset shift can gradually help caregivers manage and overcome feelings of guilt and enable them to provide more effective care for their loved ones.

Another key focus of the episode is the importance of self-reflection. By taking the time to reflect on feelings...

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What to do when you're waiting on testing, treatment options and the prognosis?

 

Welcome!   Thank you for joining me for another episode of The Caregiver Cup podcast.  It’s Episode 27.   Let me start by saying...

I never thought I would experience it again.  

These past couple weeks I have been riding the emotional roller coaster of caregiving - again.   

The words that come to mind are sudden, unexpected and why.

Cancer sucks.  It is a nasty disease.   

Aging sucks.  I hate the circle of life right now.  

But this podcast isn’t a pity party or a Debbie downer.  It’s funny how fast you forget about those firsts.  

  • The first inkling that something isn’t right with your loved one.
  • The initial shock and numbness when you hear the bad news.
  • Then comes all those emotions.  
    • Hours of sadness, crying, grief before you really need to
    • Anger, frustration 
    • Worry, confusion 
    • Feeling those nerves inside shaking
    • You can’t focus

First, let me tell you about my Mom.  I’m blessed to have a great mother-daughter relationship.  

She is an energizer bunny.  The social butterfly.  The one that is always willing to help.  She is the hard working blue collar worker with her own cleaning business.  She is still cleaning small apartments at age 79.   

She was married to my Dad 57 years until Dad passed away in 2018.  They both traveled, enjoyed spending time together and spent 15 winters in Arizona with their retirement village friends.  It amazed me to see the activities they did from riding motor cycles to ATVs to DIYing and much more.  

Mom and I did some Mother Daughter trips to Jamaica, Arizona, Minneapolis and Branson

In the last 3 years, I watched my Mom transform from a struggling widow to a strong, independent and happy woman.  If you follow me on Facebook, you might see many photos of our Sunday Fundays together.  When I visit at her...

Continue Reading