E237: Caregiving, Healing, and Transformation: A Conversation with Katie Prentiss

In a recent episode of The Caregiver Cup Podcast, I had the incredible opportunity to sit down with Katie Prentiss—a talented actress, mother, and former caregiver to her mother, who battled frontotemporal dementia (FTD). Katie’s caregiving journey, marked by deep love, challenges, and eventually healing, left me reflecting on what so many of us as caregivers go through: the struggles, the sacrifices, and the moments of clarity that bring us to new beginnings.

If you're navigating caregiving—especially in the midst of raising children or managing a career—you’ll find Katie’s story relatable, inspiring, and full of practical advice. Today, I want to share the highlights of her journey, along with some key takeaways that could help you in your caregiving life.

The Sandwich Caregiver Experience: Juggling Kids and Aging Parents

Katie found herself in what we often call the "sandwich" caregiving role, where she was simultaneously caring for her four school-aged children and her mother battling frontotemporal dementia. This dual responsibility created a whirlwind of emotions and logistical challenges. Katie candidly shared how it felt like "treading water in the middle of the ocean," trying to keep everything afloat while dealing with the slow goodbye of her mother.

Breaking Points and Finding Strength

One of the most powerful moments Katie shared was reaching her breaking point. Balancing the demands of caregiving with raising a family and running a small business was overwhelming. However, it was during these tough times that Katie discovered the importance of self-care and seeking help. She hired a nurse to provide respite, allowing her to take much-needed breaks and recharge. This decision was pivotal in preventing burnout and maintaining her own well-being.

Connecting with Resources: A Lifeline for Caregivers

Katie emphasized the critical role that connecting with various resources played in her caregiving journey. From social workers and doctors to nurses and financial advisors, having a support network made a significant difference. These resources provided not only practical assistance but also emotional support, helping Katie navigate the complexities of FTD and the caregiving landscape.

Facing Fears: Long-Term Care Concerns

Like many caregivers, Katie harbored fears about the long-term care of her mother. The uncertainty of the future and the emotional toll of watching a loved one decline are common anxieties. Katie openly discussed these fears, providing a relatable perspective for others facing similar situations. Her honesty about these challenges helps demystify the caregiving experience and offers solace to those who feel alone in their struggles.

A Profound Lesson: Love and Regret

One of the key takeaways from Katie's story was her insightful reflection: "When you feel regret, I do think that we can comfort ourselves in knowing that means there was so much love." This profound statement underscores the deep emotional bonds that drive caregivers. It serves as a reminder that feelings of regret often stem from a place of immense love and dedication, offering a comforting perspective during moments of self-doubt.

Transformation and Identity Shift

Through her caregiving journey, Katie realized she needed to push back on some of her priorities, leading to a significant transformation in her identity. She described this shift as a "beautiful, peaceful analogy"—a change that came without resistance but through acceptance and understanding. This realization allowed Katie to focus on her healing, embracing her memories, and embarking on a mid-life career change into acting.

Healing Through Creativity: The Birth of Wake Up Maggie

Katie’s path to healing culminated in her decision to pursue acting, a passion that became her sanctuary. Two years after losing her mother, Katie began her acting career, finding solace and renewal through her craft. Her upcoming film, Wake Up Maggie, is a heartfelt tribute to her mother and aims to raise awareness about FTD. This project not only honors her mother's memory but also serves as a beacon of hope and support for other caregivers navigating similar journeys.

Practical Advice for Caregivers

Katie didn’t just share her story; she offered practical advice for others in the caregiving role:

1. Seek Help When Needed: Don’t hesitate to hire professional help, such as nurses or home aides, to give yourself breaks.
2. Connect with Resources: Utilize social workers, doctors, and financial advisors to navigate the complexities of caregiving.
3. Prioritize Self-Care: Make time for activities that rejuvenate you, whether it’s practicing yoga, hiking, or simply enjoying a cup of coffee.
4. Embrace Change: Allow yourself to evolve and shift priorities as needed, recognizing that your identity may transform through the caregiving journey.

Reflecting on Your Own Caregiving Journey

Katie’s story is not just her own—it’s a reflection of the countless caregivers out there who juggle responsibilities, face fears, and seek healing. This conversation got me thinking about you and your caregiving journey. Where are you at in your journey? What resources are you tapping into? What is your current realization, and how are you working through it? I invite you to send me a text message and share your key takeaways.

Call to Action: Reach Out and Find Support

Remember, I am here for you. If you ever feel stuck or need support navigating challenges, reaching out for help can make all the difference. You don't have to go through this alone. Connect with fellow caregivers, seek professional assistance, and take time for yourself.

Stay Tuned for Wake Up Maggie

I can't wait to see Katie's new movie next year—Wake Up Maggie. If you want to follow her journey or learn more about the film, visit wakeupmaggiemovie.com. Katie’s story of love, resilience, and reinvention is sure to inspire and support the caregiving community.

Thank you for joining us on this episode of the Caregiver Cup. Stay strong, stay connected, and remember that your story matters. Until next time, take care and keep supporting one another.

About Katie Prentiss

Two years after losing her mom to dementia at a young age, Katie began a career in acting with her role as Denise on Sophie Jones. Acting immediately became her passion and seemed to be the perfect culmination of her previous chapters in life—from English major, to mother, to portrait photographer, Katie has lived stories and loved people. She is most known for her roles as Beth in Winter Island and Sadie in Going Home, seasons 1 & 2. Her award-winning films include Front Porches (2020 | Best Oregon Film, Best Actress) and a web series called Gamer (2022/2023 | Best of Oregon, Best Micro Short). She is currently working on her first feature film called Wake Up Maggie, which is a love letter to her mom.

When she’s not on set, Katie’s work includes shooting portraits, coaching actors, or creating content online. Outside of work, she’s found practicing yoga, refilling her coffee, taking a tap class, or spending time in nature, hopefully on a hike.

Connect with Us

Stay updated with more inspiring stories and resources by subscribing to The Caregiver Cup Podcast. Follow us on social media and join our community of caregivers supporting each other through every step of the journey.

Visit wakeupmaggiemovie.com to follow Katie Prentiss’s journey and learn more about her upcoming film, Wake Up Maggie.